Welcome to Blissful Breathing!
Welcome to Blissful Breathing, where we're dedicated to raising funds to help a family affected by Cystic Fibrosis, with the end goal to also help improve the quality of life of other patients with Cystic Fibrosis in South Africa. We aim to make a difference in the lives of those affected by this condition, by ensuring access to life-saving treatments and medications are within reach for them.
"As long as I breathe, I will fight towards the boundless horizons of a life filled with hope, beauty and joy!"
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One of the most common questions I received growing up was: "How does it feel living with CF?"
This has always been a difficult question, because CF was all I ever knew growing up and I didn't know living my "normal" life was supposed to "feel" some type of way. I grew up without questioning any of my 2 hour daily treatments, 3 nebulizations a day, a handful of enzymes and antibiotics, monthly doctor appointments, and dodging people who were sick. I was accustomed to the constant coughing fits and regular stomach aches, and thought this was normal. When I wasn't able to run as far or quick as others, I blamed it on a lack of fitness or exercise.
Until one day, when all of this wasn't my normal anymore.
As I grew up, my lungs weakened and even more treatments were required. As life became more demanding, CF also became more demanding. As CF became more demanding, treatments and medication became more demanding. And as more antibiotics, more physio therapy sessions, more inhalers and more exercise was needed, the financial burden became more demanding.
I hope by sharing my story, I can raise awareness about the realities of living with cystic fibrosis and the financial struggles that come with it. Together, we can work towards finding solutions and making treatments and medication more accessible and affordable for those living with this condition.
Currently, all funds donated will be going towards ensuring Lize can continue using these life-saving drugs, as it is impossible to fund alone. Trikafta is still not registered in South Africa, and using Trixacar as a South African patient costs more than R70,000 per month. We hope to raise enough money to give to other patients as well.
Help Lize to continue using this medication and ensure a quality of life that was never before promised. We believe in transparency and will deliver regular updates in the Blog section.
Join me on this journey as I navigate the challenges and triumphs of living with cystic fibrosis, and explore the potential of this new medication. Together, let's push some boundaries and redefine limits!